To all of you out there… thank you.

“Patients’ rights

Formalized in 1948, the Universal Declaration of Human Rights recognizes “the inherent dignity” and the “equal and unalienable rights of all members of the human family”. And it is on the basis of this concept of the person, and the fundamental dignity and equality of all human beings, that the notion of patient rights was developed. In other words, what is owed to the patient as a human being, by physicians and by the state, took shape in large part thanks to this understanding of the basic rights of the person.”

Just click for more
http://www.who.int/genomics/public/patientrights/en/

I was happy you mentioned the medical professionals’ lack of training in handling grief during the interview. YOu were right, Cheche Lazaro was a great host. By the way, can we get Fallen Cradle from National Bookstore? I am sure we cannot find it in Dumaguete but if I should get the chance to visit Cebu, I will certainly drop by National to get a copy.

I saw my OB-Gyne yesterday. She’s a formidable lady and she agrees with my observations regarding the lack of training of the employees of Silliman Medical Center. In her own way, she has helped a lot in promoting my cause. For instance, when I told her about how an intern came to the ER to see a patient (I was there at that time for another reason), she wanted to know which patient she was supposed to attend to. Instead of taking the chart and maybe asking, which bed is “Patient Uy” or “Patient Dado”, for instance, she just asked a nurse, while pointing her thumb to a certain bed, “mao ni?” It’s like saying in tagalog, “ito ba yon?” I remembered thinking at that time, how ill-mannered of her. My Abby (at 5 years then) has better manners, and to think that she is a doctor!!! Bastos siya. My OB told me she met with the doctor in charge of the interns right away and demanded he had another talk with his charges. And you know what? I was at the ultrasound room yesterday afternoon. An intern came, peeped at our cubicle and said to the sonologist, “excuse me, I’m looking for Patient ______.” Hey! That’s a great improvement! I would like to believe that the change for the better is part of the greater reason and meaning that I have been searching for.

I also told her about one incident when my uncle laid dead at the ER after a vehicular accident and while we milled around in tears, the nurses and other personnel at the ER carried on with their life as usual, laughing, loud chika, etc. I asked my doctor, are these employees not supposed to observed proper decorum in those situations? Like for example, when a mass is going on in church, everybody knows we’re not supposed to converse loudly with our companions, right? or take calls from our phones? or even text? I asked if their employees were also briefed along these lines, especially along the giving of respect to the sensitivies of others. Dra. Go told me she took it up with the head nurse. I hope the latter is taking it seriously. As I said, Dra. Go is formidable. I expect the head nurse wont hear the end of it from this lady.

I also discovered that the employees of Silliman University Medical Center do not have an Employee Code of conduct or Ethics. There is a code of discipline, but proper and uniform set of guidelines as to how they should deal with their patients? That’s presently non-existent. Briefings and orientations of new employees are left to the dept head, and obviously, their guidance along proper conduct is basically left to the discretion and subjective views of each dept head.

I am now working on that line. gather what materials I could, and submit suggestions to the board of Trustees, including suggest to them that patients should be given a handbook advising them of their rights so that the patients themselves can act as some sort of “police” for the employees.

I have a material from the US embassy, from their veterans outpatient dept. It is about Patients’ Rights and Responsibilities. I’m going to look into DOH and maybe, WHO. maybe there is some universal declaration on that, like the one on Children’s Rights.

PLEASE, IF THERE IS SOMEBODY OUT THERE WHO HAS THAT KIND OF MATERIAL, PLEASE!!! I WOULD APPRECIATE IT VERY MUCH IF YOU COULD SHARE THEM WITH ME. My email add is olgaluciauy@yahoo.com or maybe you can course them through NOEMI if she wont mind? IT WILL REALLY HELP ME BIG TIME! Thanks in advance. God bless you all. -olga-

Olga: I will share it to Arlene.

I am so sorry for your loss. It must have been terribly painful for you, especially because you had to watch how delicate Daniel was after his surgery and to be handled that way?!! I am certain that nurse has no child of her own. In fact, I think she has no life at all, nobody loves her thus, she does not know how to give love to others, even to a helpless baby.

My child was never born, but reading your story also brought back memories of those days when I had spotting and how hard I prayed for God to let my baby live. It must have been like that for you too. To feel so helpless… wanting so much to do something to save our baby… but what? All we could then do was pray. I also understand perfectly how mortified you and your husband must have felt when you were approached about the fees … I felt that way too when my precious dead baby was made the object of toilet humor.

My friend’s granddaughter recently had dengue fever. When she got better, a nurse came to remove her IV. My friend told me that the nurse just proceeded to tear off the brown tape, as if she was peeling banana skin, completely oblivious to the little girl’s cries of pain. The lola could see tiny hairs coming off.

I’d like to share something with you but I don’t have your email add. I forwarded a copy to NOEMI…the one with the premature baby. Maybe she can forward it to you? Or if you like, please email me olgaluciauy@yahoo.com so I can forward a copy to you directly. I hope it wont bring back painful memories. It is a beautiful story and I hope somehow, it will bring you the same comfort it brought me. -olga-

Arlene: As you wrote your experience, I could feel the pain of Daniel and you as well. Even when my babies were just being injected, I cried with them. what more with your Daniel? How terrible that nurse is. It’s like the baby is a nuisance to her. I wonder if she has a child of her own.

My precious baby Daniel underwent an open-heart surgery when he was barely four days old to correct a major arterial switch. After the surgery, he was hooked up on myriad of tubes. As the tubes had to be kept well-sanitized, the nurses had to do routine suctioning. The task had to be delicately handled because the tubes were deeply connected to my baby’s tiny lungs and tummy, and any faulty move, no matter how slight, could trigger an internal bleeding.

Thus, I was gravely mortified when I saw this nurse callously doing the suctioning, as if she was not doing it on a tender infant. Unlike the other nurses who did the task with such gentleness and great care, this one seemed to be so in a hurry to finish the suctioning; she was doing the sensitive task perfunctorily. She was oblivious that my baby was visibly hurting. My baby was crying (his cry would break your heart because it was without sound as he was on ventilator) and vigorously flailing his arms and yet the nurse appeared not to notice it. It was only after seeing that I was around that she tried to do the task gently. When I confronted her, she just kept her silence, pretending not to hear what I was saying. I wanted so much to lash out at her but I had to restrain myself because I know that the well being of my baby was in their hands. But I made sure that the matter was known and reported.

Perhaps to her, my precious baby was just one of her many patients, but for me, a mother, he was my life. I cried when he cried, I felt his pain, his discomfort, and the suffering he was going through right though my entire being.

The night after that incident, my baby had his first bout of internal bleeding.

Then there was this resident doctor, a fellow, who barely a few minutes after my baby expired had the temerity to approach me and hubby to remind us of the bills that we have to settle, telling us that she is sorry and all but she was instructed by the consultant to tell us of the bills we need to settle.. etc. etc. By God, we were still in the neonatal ICU, holding and hugging our precious baby for the first time, trying hard to absorb our tragic loss, consoling each other, and there she was talking about bills to pay. And to think we are not even a charity case.

To this day, I seeth with fury whenever I remember those incidents. I wish that these medical professionals would be more compassionate in dealing with their patients, more sympathetic instead of being so remote and impersonal.