Orphan Disorders & Rare Diseases in the Philippines
A parent’s love knows no boundaries. Remember the movie, Lorenzo’s Oil? Failing to find a doctor capable of treating their young son Lorenzo’s rare disease, adrenoleukodystrophy (ALD), Augusto and Michaela Odone sought their own cure. Lorenzo died on May 30, 2008 at the age of 30 though but lived 16 more years...
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